Welcome to the Adrenal Insufficiency Study (AIS) .

This is designed as a longitudinal study of people with known adrenal insufficiency along with two comparison groups (those who may be at-risk of future adrenal insufficiency and healthy people who do not have known risk factors).  We would like to use the information from this study so that we can understand how adrenal disease progresses over time.  

Although we primarily want to have people committed to the longitudinal study, individuals may complete only these initial surveys and not participate in the longitudinal part of the study.  The initial study enrollment is series of surveys/questionnaires to be completed on line.  They need to be completed in one sitting so please allow sufficient time (at least 30 minutes) to complete them.  This first document is a consent to participate in the research project.  You have the option to agree to continuing in this study longitudinally and also the option to be contacted in the future for other research studies within the consent.

Please read the consent carefully and sign it at the end using your mouse.  A copy of the consent will be sent to you by email.

If you are participating in the study as a person with adrenal insufficiency or at-risk for future disease we ask to have medical records from you to confirm the correct category for you.  You will be asked during the survey if you are willing to provide medical records.  If you answer "yes", we will send an email with a link to upload the records.  You should remove identifying information (name, address, phone number, medical record ID etc) from the medical records by blackening those areas with a marking pen.  The records will be coded with your assigned study ID number when you upload them through the link provided.  The most important records that we need are results of hormone tests - particularly cortisol and ACTH level in the morning, an ACTH stimulation test and some kind of summary opinion from your physician about what your diagnosis is. For at-risk subjects who have other conditions we would like medical records that confirm your other medical conditions.

You can save and/or print a copy of the consent form after completing the form.

Thank you!

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